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Tagged With: LCH

Argh, the Dreams, Yay, the Boy.

My over-active imagination never seems to miss an appointment. I tire of writing about this, now that Elijah’s chemo treatment is 2 years behind us, but apparently I need to work it out some more, or there’s some reason I’m not supposed to “get over it.” Last night, as I was trying to sleep, I … Continue reading »

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Langerhans Cell Histiocytosis (LCH) – Rare Disease Day 2012

Since today is Rare Disease Day, I decided to recap our experience with Langerhans Cell Histiocytosis (LCH). Langerhans cells are immune cells that are normally present in the skin and mucosa. LCH happens when immature Langerhans cells behave like cancer cells – proliferating, and sometimes travelling through the blood stream to end up in other … Continue reading »

Categories: LCH | Tags: , , , , , , , , , , , | 2 Comments

Our Baby Got De-ported!

Today is the day we celebrate Elijah officially being a normal, healthy boy, finally free of all physical “ties” to modern medicine. He had his surgery this morning to have his mediport removed, and he did great! ¬†We weren’t thrilled that he had to wait two hours past his scheduled time, but were forgiving because … Continue reading »

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